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APPIS SUMMIT IS BACK FOR OUR 3ᴿᴰ YEAR

APPIS SUMMIT 2023

APPIS Summit 2023 took place on 20-21 March 2023 and gathered over 1,400 registrations across the healthcare ecosystem from over 60 countries who came together with the common goal of accelerating access for patients and prioritizing action towards better health outcomes in Asia Pacific, Middle East, and Africa.

During the Summit, we took a deep dive into the challenges faced by patients and caregivers, the importance of multi-stakeholder partnerships, and the scale of impact we can have on patient lives when we join forces. This year’s Summit agenda continues to address the region’s critical challenges and opportunities in:

Health Literacy

Health Literacy

Health Literacy
Health Policy Shaping

Health Policy Shaping

Health Policy Shaping
Digital Health and Communications

Digital Health and Communications

Digital Health and Communications

Download the Summit’s thematic highlights to zoom in on the discussions covered during this year’s Summit.

APPIS Region-Wide Summit 2023: Agenda & Recordings

For more information on the respective speakers, please click on their photos.

agenda

Day 1: Monday, 20th March, 15:00-18:00 (GMT+8) 

Time

Agenda and Speakers

15:00

Rod Padua
Ruth Kuguru
Iris Zemzoum

Welcome 

Coming together to accelerate access for patients

Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Iris Zemzoum, President, Novartis Asia Pacific, Middle East and Africa 

Rod Padua

15:35

Mind the Gap

What does good health literacy look like?

Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network

Stanley Li

Lessons Learned from China

Leading virtual health and telemedicine platform shares insights on health literacy

Stanley Li, Founder and Chairman, DXY.cn

Viji Venkatesh
Rod Padua

Measuring the Impact of Health Literacy

A case study on India’s Chronic Myeloid Leukemia awareness campaign

Viji Venkatesh, Region Head, India & South Asia, The Max Foundation

Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network

16:45

Break

Julie Cini

16:55

Digging into the Data

A look at real-world evidence and its role in increasing patient involvement in health policy shaping

Julie Cini, Founder and CEO, Spinal Muscular Atrophy Australia Inc.

Pieter De Richter

The A-to-Z of RWE

Why, how, and who to engage when collecting patient data for real-world evidence

Pieter De Richter, Head of APAC/MENA Syndicated Real World Evidence, Ipsos Healthcare

Julie Cini
Dr. Sawsan A. S. Al Madhi
Zack Pemberton-Whiteley
Ajay Tiku

Stories of Successful Health Policy Shaping

Real-life experience of using real-world evidence

Julie Cini, Founder and CEO, Spinal Muscular Atrophy Australia Inc.

Dr. Sawsan A. S. Al Madhi, Advocacy Adviser, AlignnEficient Health Consultancies; Former Director-General, Friends of Cancer Patients Charity UAE

Zack Pemberton-Whiteley, CEO, Leukaemia Care and Founding Chair, Acute Leukemia Advocates Network

Ajay Tiku, Regional Medical Head, Novartis Asia Pacific, Middle East and Africa

SungKi Kim

17:55

Closing Remarks

SungKi Kim, President, Korea Psoriasis Association

Hani M Sabbour
Mahira El Sayed
El Amira Nermine Zakaria
Reem Eladl

#CareUnblocked

Closing the gap between patients and healthcare providers to enable better decision-making for treatment and health

Hani M Sabbour Asst. Prof. Cardiology, Brown University Medical School; Consultant Cardiology & Pulmonary Hypertension, Abu Dhabi 

Mahira El Sayed, Professor of Dermatology and Venereology, Ain Shams University & Board Member of the International Psoriasis Council

El Amira Nermine Zakaria, Founding Member of Psoriasis Patient Organization Egypt (under development) 

Reem Eladl, Director, Patient Engagement Country Partner, Innovative Medicines, China & Japan 

Day 2: Tuesday, 21st March, 15:00-18:00 (GMT+8)

Time

Agenda and Speakers

15:00

Carmen Auste
Ruth Kuguru
Javier Boix

Welcome 

Elevating health advocacy with innovation and creativity 

Carmen Auste, Senior Vice President, Cancer Coalition Philippines; CEO, Cancer Warriors Foundation Philippines

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Javier Boix, Head, Communications & Engagement, Novartis Innovative Medicines International 

Adam Chee

15:20

Next Generation Patient Influencer

Connecting with patients and making waves via social media

Adam Chee, Chief, Smart Health Leadership Centre, National University Singapore

Corrine Ellsworth-Beaumont
Bahija Gouimi

Let’s Go Viral

Igniting patient advocacy with creative social media content for Breast Cancer and Chronic Myeloid Leukemia

Corrine Ellsworth-Beaumont, Founder and CEO, Know Your Lemons® Foundation

Bahija Gouimi, Region Middle East & Africa Representative, Chronic Myeloid Leukemia Advocates Network

Kristofer Rogers
Rod Padua

The Future of Fundraising

5 digital fundraising strategies to sustain your patient organization

Kristofer Rogers, Director, Eden Consultancy; Board Member, Feros Care; Advisor, The Max Foundation

Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network

16:20

Break

Ruth Kuguru

16:30

The Art and Science of Amplifying the Patient Experience to Drive Change

How to use storytelling as a powerful tool for health advocacy

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Warren Fernandez

Hitting the Headlines

Engaging media with powerful patient stories

Warren Fernandez, CEO, Asia Pacific, Edelman

Dr Gia Sison

From Personal to Powerful

My journey from Breast Cancer advocate to storyteller

Dr Gia Sison, Head, Wellness Center at Makati Medical Center; Host, G Talks, CNN Philippines

17:15

Paul Mendoza
Kara Magsanoc-Alikpala
Ruth Kuguru
Joy Ong

APPIS Innovator Program 2023

Partnering with patient organizations to scale innovative patient solutions

Paul Mendoza, President, Psoriasis Philippines and Psoriasis Asia Pacific

Kara Magsanoc-Alikpala, Founding President, ICANSERVE Foundation

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Joy Ong, Director, Patient Engagement, Novartis Asia Pacific, Middle East and Africa

17:45

Closing Remarks

APPIS Council Members

Adam Chee
Duo Xu

Dream Bigger in a New Digital Era

How patient groups can tap into the power of health data and digital trends

Adam Chee, Chief, Smart Health Leadership Centre, National University Singapore

Dou Xu, Associate Director, Communication & Engagement, Novartis Asia Pacific, Middle East and Africa

APPISx Events

Beyond the virtual summit, there were several APPISx events happening in countries from across the Asia Pacific, Middle East and Africa. APPISx is where patient organizations and local healthcare stakeholders convene to discuss, partner and act on important healthcare and patient access topics in their country throughout the year. APPISx events took place in Thailand, Taiwan, Japan, Korea and India with Egypt, Gulf, Saudi Arabia and UAE coming together as one Middle East cluster to identify challenges and opportunities to partner together. APPISx will also reach the shores of South Africa, the Philippines and Australia before the end of 2023!

APPIS 2023 Council

A special thanks to our APPIS 2023 Council Members who co-created this year’s program:

Rod Padua

President, Touched By Max Inc. Philippines, Chronic Myeloid Leukemia Advocates Network

Mahira El Sayed

Professor of Dermatology
and Venereology,
Ain Shams University
IPC Board Member

Stanley Li

Founder and Chairman, DXY.cn

Adam Chee

Chief, Smart Health Leadership Centre, National University Singapore

Bahija Gouimi

Region Middle East & Africa Representative, Chronic Myeloid Leukemia Advocates Network

Carmen Auste

Senior Vice President,
Cancer Coalition Philippines
CEO, Cancer Warriors Foundation Philippines

Julie Cini

CEO, Spinal Muscular Atrophy Australia Inc.

SungKi Kim

President, Korea Psoriasis
Association

Ruth Kuguru

Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle
East and Africa

Get Involved!

Email info@APPISInitiative.com to join our APPIS Community and be kept up to date with the latest information on APPIS. Visit our Resource Center for curated resources developed by the APPIS Community to identify and address pertinent issues faced by patient organizations across the region.

Get Involved!
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