APPIS SUMMIT IS BACK FOR OUR 3ᴿᴰ YEAR
APPIS SUMMIT 2023
APPIS Summit 2023 took place on 20-21 March 2023 and gathered over 1,400 registrations across the healthcare ecosystem from over 60 countries who came together with the common goal of accelerating access for patients and prioritizing action towards better health outcomes in Asia Pacific, Middle East, and Africa.
During the Summit, we took a deep dive into the challenges faced by patients and caregivers, the importance of multi-stakeholder partnerships, and the scale of impact we can have on patient lives when we join forces. This year’s Summit agenda continues to address the region’s critical challenges and opportunities in:
Download the Summit’s thematic highlights to zoom in on the discussions covered during this year’s Summit.
APPIS Region-Wide Summit 2023: Agenda & Recordings
For more information on the respective speakers, please click on their photos.
Day 1: Monday, 20th March, 15:00-18:00 (GMT+8)
Time
Agenda and Speakers
15:00
Welcome
Coming together to accelerate access for patients
Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network
Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa
Iris Zemzoum, President, Novartis Asia Pacific, Middle East and Africa
15:35
Mind the Gap
What does good health literacy look like?
Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network
Lessons Learned from China
Leading virtual health and telemedicine platform shares insights on health literacy
Stanley Li, Founder and Chairman, DXY.cn
Measuring the Impact of Health Literacy
A case study on India’s Chronic Myeloid Leukemia awareness campaign
Viji Venkatesh, Region Head, India & South Asia, The Max Foundation
Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network
16:45
Break
16:55
Digging into the Data
A look at real-world evidence and its role in increasing patient involvement in health policy shaping
Julie Cini, Founder and CEO, Spinal Muscular Atrophy Australia Inc.
The A-to-Z of RWE
Why, how, and who to engage when collecting patient data for real-world evidence
Pieter De Richter, Head of APAC/MENA Syndicated Real World Evidence, Ipsos Healthcare
Stories of Successful Health Policy Shaping
Real-life experience of using real-world evidence
Julie Cini, Founder and CEO, Spinal Muscular Atrophy Australia Inc.
Dr. Sawsan A. S. Al Madhi, Advocacy Adviser, AlignnEficient Health Consultancies; Former Director-General, Friends of Cancer Patients Charity UAE
Zack Pemberton-Whiteley, CEO, Leukaemia Care and Founding Chair, Acute Leukemia Advocates Network
Ajay Tiku, Regional Medical Head, Novartis Asia Pacific, Middle East and Africa
17:55
Closing Remarks
SungKi Kim, President, Korea Psoriasis Association
#CareUnblocked
Closing the gap between patients and healthcare providers to enable better decision-making for treatment and health
Hani M Sabbour Asst. Prof. Cardiology, Brown University Medical School; Consultant Cardiology & Pulmonary Hypertension, Abu Dhabi
Mahira El Sayed, Professor of Dermatology and Venereology, Ain Shams University & Board Member of the International Psoriasis Council
El Amira Nermine Zakaria, Founding Member of Psoriasis Patient Organization Egypt (under development)
Reem Eladl, Director, Patient Engagement Country Partner, Innovative Medicines, China & Japan
Day 2: Tuesday, 21st March, 15:00-18:00 (GMT+8)
Time
Agenda and Speakers
15:00
Welcome
Elevating health advocacy with innovation and creativity
Carmen Auste, Senior Vice President, Cancer Coalition Philippines; CEO, Cancer Warriors Foundation Philippines
Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa
Javier Boix, Head, Communications & Engagement, Novartis Innovative Medicines International
15:20
Next Generation Patient Influencer
Connecting with patients and making waves via social media
Adam Chee, Chief, Smart Health Leadership Centre, National University Singapore
Let’s Go Viral
Igniting patient advocacy with creative social media content for Breast Cancer and Chronic Myeloid Leukemia
Corrine Ellsworth-Beaumont, Founder and CEO, Know Your Lemons® Foundation
Bahija Gouimi, Region Middle East & Africa Representative, Chronic Myeloid Leukemia Advocates Network
The Future of Fundraising
5 digital fundraising strategies to sustain your patient organization
Kristofer Rogers, Director, Eden Consultancy; Board Member, Feros Care; Advisor, The Max Foundation
Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network
16:20
Break
16:30
The Art and Science of Amplifying the Patient Experience to Drive Change
How to use storytelling as a powerful tool for health advocacy
Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa
Hitting the Headlines
Engaging media with powerful patient stories
Warren Fernandez, CEO, Asia Pacific, Edelman
From Personal to Powerful
My journey from Breast Cancer advocate to storyteller
Dr Gia Sison, Head, Wellness Center at Makati Medical Center; Host, G Talks, CNN Philippines
17:15
APPIS Innovator Program 2023
Partnering with patient organizations to scale innovative patient solutions
Paul Mendoza, President, Psoriasis Philippines and Psoriasis Asia Pacific
Kara Magsanoc-Alikpala, Founding President, ICANSERVE Foundation
Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa
Joy Ong, Director, Patient Engagement, Novartis Asia Pacific, Middle East and Africa
17:45
Closing Remarks
APPIS Council Members
Dream Bigger in a New Digital Era
How patient groups can tap into the power of health data and digital trends
Adam Chee, Chief, Smart Health Leadership Centre, National University Singapore
Dou Xu, Associate Director, Communication & Engagement, Novartis Asia Pacific, Middle East and Africa
APPISx Events
Beyond the virtual summit, there were several APPISx events happening in countries from across the Asia Pacific, Middle East and Africa. APPISx is where patient organizations and local healthcare stakeholders convene to discuss, partner and act on important healthcare and patient access topics in their country throughout the year. APPISx events took place in Thailand, Taiwan, Japan, Korea and India with Egypt, Gulf, Saudi Arabia and UAE coming together as one Middle East cluster to identify challenges and opportunities to partner together. APPISx will also reach the shores of South Africa, the Philippines and Australia before the end of 2023!
APPIS 2023 Council
A special thanks to our APPIS 2023 Council Members who co-created this year’s program:
Rod Padua
President, Touched By Max Inc. Philippines, Chronic Myeloid Leukemia Advocates Network
Mahira El Sayed
Professor of Dermatology
and Venereology,
Ain Shams University
IPC Board Member
Stanley Li
Founder and Chairman, DXY.cn
Adam Chee
Chief, Smart Health Leadership Centre, National University Singapore
Bahija Gouimi
Region Middle East & Africa Representative, Chronic Myeloid Leukemia Advocates Network
Carmen Auste
Senior Vice President,
Cancer Coalition Philippines
CEO, Cancer Warriors Foundation Philippines
Julie Cini
CEO, Spinal Muscular Atrophy Australia Inc.
SungKi Kim
President, Korea Psoriasis
Association
Ruth Kuguru
Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle
East and Africa
Get Involved!
Email info@APPISInitiative.com to join our APPIS Community and be kept up to date with the latest information on APPIS. Visit our Resource Center for curated resources developed by the APPIS Community to identify and address pertinent issues faced by patient organizations across the region.