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APPIS SUMMIT 2024

19 & 20 March 2024

Tuesday & Wednesday

Join healthcare leaders and experts from across the world for in depth discussions on how to build impactful partnerships to address barriers to access for patients, improve health equity and prioritize action towards better health outcomes in Asia, Pacific, Middle East, and Africa.

Please refer to your local timings below:

Egypt & South Africa

Turkiye & Saudi Arabia
Gulf

India
Thailand
Singapore & China
Korea & Japan
Australia

09:00 – 12:00 (GMT+2)
10:00 – 13:00 (GMT+3)
11:00 – 14:00 (GMT+4)
12:30 – 15:30 (GMT+5.5)
14:00 – 17:00 (GMT+7)
15:00 – 18:00 (GMT+8)
16:00 – 19:00 (GMT+9)

18:00 – 21:00 (GMT+10)

The APPIS Summit 2024 will be broadcasted virtually in English with simultaneous interpretation in Arabic, Chinese, Japanese, Korean, Thai, Turkish and Vietnamese.

APPIS 2024 COUNCIL

Meet our APPIS 2024 Council, made up of individuals who possess a wealth of experience and expertise in the healthcare field. Together, they have created an exceptional program for APPIS 2024!

Rod Padua

President, Touched By 

Max Inc Philippines; Chair, 

CML Advocates Network

Nam Soohyoun

Journalist, Korea

JoongAng Daily

Mervat Mattar

Professor, Department 

of Hematology, Cairo 

University

Meredith Cummins

CEO, NeuroEndocrine

Cancer Australia

Julie Cini

Global Legacy Lead, 

Advocacy Beyond Borders

Liu Chang

Founder & CEO, 

ASK Health Asia

Adam Chee

Associate Professor, Saw 

Swee Hock School of Public 

Health, National University 

of Singapore

Mahira El Sayed

Professor, Department of 

Dermatology and 

Venereology, Ain Shams 

University, Egypt

Rania Azmi

President, Fadia Survive and 

Thrive International Cancer 

Association

Dilek Ural

Professor, Department of 

Cardiology, Koc University, 

Türkiye

Ruth Kuguru

Executive Director, 

Communications & Engagement, 

Novartis Asia Pacific, Middle 

East & Africa

Sharon Hsiao Fei Yuan

Professor and Director, 

Graduate Institute of 

Clinical Pharmacy, 

National Taiwan University

*Strategic Advisor

Key Themes for APPIS Summit 2024

Health Literacy

Health Policy Shaping

Future Readiness

APPIS Region-Wide Summit 2024: Agenda

For more information on the respective speakers, please click on their photos.

Time (GMT+8)

Agenda & Speakers

15:00

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Welcome to APPIS 2024!

Uniting our Efforts for a Healthier and More Equitable Future

Rod Padua, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network 

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Iris Zemzoum, President, Novartis Asia Pacific, Middle East and Africa

15:20

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Advocacy for Better Quality of Life​

Session Introduction 

Mervat Mattar, Professor, Department of Hematology, Cairo University

HEALTH LITERACY

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What does Quality of Life mean?

A Closer Look at Providing Optimal Care to Support the Quality of Life of Cancer Patients

Katharine Hodgkinson​, Director, HeadWayHealth Clinical and Consulting Psychology Services

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The Role and Impact of Psycho-Oncology in Cancer Care​

Understanding the Two-Sided Relationship between Cancer and Psychological Health

Gabriella Pravettoni, Director, Psycho-Oncology Division, European Institute of Oncology

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Our Wellbeing is a Human Right​

Empowering Patient’s Voice and Choice with Effective Patient-Physician Communication​

Rania Azmi​, President, Fadia Survive and Thrive International Cancer Association

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Can Patient Coaching Improve Treatment Outcomes?​

Enabling Patients to Make Better Decisions about their Care​

Hans Tesch, Partner, Oncology Practice at Bethanien Hospital Frankfurt am Main; Director, Cancer Center Frankfurt Northeast 

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​Lessons & Success in Patient Self-Advocacy

An Australian Perspective on Cancer Care

Meredith Cummins, CEO, NeuroEndocrine Cancer Australia​

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Partnering for Success in Low-to-Middle Income Countries

Insights from Egypt’s Successful National Breast Cancer Screening Awareness Campaign​

Hesham ElGhazaly, Head of Presidential Initiative of Women’s Health, Ministry of Health & Population, Egypt

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Panel Discussion: How Can Advocacy Initiatives Contribute to Enhancing Quality of Life?

Exploring the Strategies, Challenges and Potential Impact

Hesham ElGhazaly, Head of Presidential Initiative of Women’s Health, Ministry of Health & Population, Egypt

Mervat ​Mattar, Professor, Department of Hematology, Cairo University

Mahira El Sayed, Professor, Department of Dermatology and Venereology, Ain Shams University, Egypt

Meredith Cummins​, CEO, NeuroEndocrine Cancer Australia​

Reem Eladl, Director, Patient Advocacy, Novartis China and Japan (Moderator)

16:35

Break

HEALTH POLICY SHAPING

16:45

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Real World Evidence for Impactful Outcomes in Health Policy Shaping

Session Introduction 

Julie Cini, Global Legacy Lead, Advocacy Beyond Borders

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The Influence of Patient Data on Pricing and Reimbursement Policies​

Explore how Real-world Evidence Plays a Role in Shaping Policies of Health Technologies

Meg Gibbs, Director, Worldwide Pricing and Value and Access, Novartis

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Connecting the Dots​:

A Framework to Guide Real World Data Collection to Engage Private and Public Payers​

Liu Chang, Founder and CEO, ASK Health Asia

Zhengcheng Liu, Secretary General, Beijing New Sunshine Charity Foundation

Sharon Hsiao Fei Yuan, Professor and Director, Graduate Institute of Clinical Pharmacy, National Taiwan University

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Unlocking Insights: Innovations in Real World Data Utilization​

Sharing Best Practices in Harnessing Real-World Data for Health Policy Shaping

Archana Panda, Co-founder and Director, CureSMA India​

Sara Al Dallal, President, Emirates Health Economics Society​ 

Imjai Chitapanarux, Chair, Suandok Breast Cancer Network

Ruth Kuan-Ju Chen, Executive Director, Taiwan Foundation For Rare Disorders

Julie Cini, Global Legacy Lead, Advocacy Beyond Borders (Moderator)

17:55

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Day 1 Closing Remarks

Mahira El Sayed, Professor, Department of Dermatology and Venereology, Ain Shams University, Egypt

18:00

End of Day 1

Time (GMT+8)

Agenda & Speakers

15:00

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 Welcome to Day 2

Harnessing the Power of Data in Healthcare

Ruth Kuguru, Executive Director, Communications & Engagement, Novartis Asia Pacific, Middle East and Africa

Sharon Hsiao Fei Yuan, Professor and Director, Graduate Institute of Clinical Pharmacy, National Taiwan University

Javier Boix, Global Head, International Communications & Advocacy, Novartis

15:10

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Safeguarding your Health Data​

Session Introduction 

Nitin Dhavate, Region Head of Data Privacy, Digital & AI Compliance, Novartis Asia Pacific Middle East Africa & Global Health 

HEALTH POLICY SHAPING

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Guardians of Privacy: 

A Fireside Chat with Patient and Industry Leaders on How to Safeguard your Personal Data in Real-World Data Collection

Joanne Yoong, Founder, Research for Impact; President, ISPOR Singapore Chapter

Carmen Auste, Senior Vice President, Cancer Coalition Philippines; CEO, Cancer Warriors Foundation Philippines; Vice President, the Philippine Health Research Ethics Board

Nitin Dhavate, Region Head, Data Privacy, Digital & AI Compliance, Novartis Asia Pacific Middle East Africa & Global Health ​(Moderator)

15:30

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Leveraging the Power of Artificial Intelligence, Digitalization, and Media to Foster Healthier Societies 

Session Introduction 

Adam Chee, Associate Professor, Saw Swee Hock School of Public Health, National University of Singapore

FUTURE READINESS

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Leapfrogging with A.I.​

Uncover how Digital Tools and Artificial Intelligence are Transforming the Patient Landscape

Nicole Scully​, Interim CEO, Leukaemia Care, Director of Comms and Fundraising

Rod Padua​, President, Touched By Max Inc. Philippines; Chair, Chronic Myeloid Leukemia Advocates Network (Moderator)

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Powering Breast Cancer Awareness and Early Detection through Digital and A.I. ​ 

Discover how Digital Platforms are Revolutionizing Breast Cancer Awareness in Thailand and Breast Cancer Risk Screening in Singapore

Ireal ​Traisarnsri, Founder and Managing Director, Art for Cancer by Ireal

Mikael Hartman, Head & Senior Consultant, Division of General Surgery (Breast Surgery), National University Hospital

Adam Chee, Associate Professor, Saw Swee Hock School of Public Health, National University of Singapore (Moderator)

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A Window into Wearables Improving Cardiovascular Health​

A Case Study on how Wearables for Healthcare are Helping to Generate Important Patient Insights​ for Heart Health 

Işıl Özkan, R&D International Collaborative Projects Coordinator, Turkcell Technology Research and Development

Dilek Ural​, Professor, Department of Cardiology, Koç University School of Medicine

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Empowering Patient Advocacy through Strategic Media Partnerships​

A Case Study on how a Korean Patient Organization Collaborated with Media Outlets to Safeguard Patients’ Interests

Nam Soohyoun, Journalist, Korea JoongAng Daily

16:45

Break

APPIS IMPACT ON THE GROUND

16:55

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APPISx: Uniting Healthcare Stakeholders to Addressing Unique Challenges in Diverse Healthcare System Archetypes

Session Introduction 

Duo Xu, Associate Director, Patient Advocacy, Novartis Asia Pacific, Middle East and Africa

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APPISx Philippines:

Amplifying Breast Cancer Awareness through Effective Health Reporting in Philippines

Joyce Pañares, Managing Editor, Manila Standard Seminar Director, Philippine Press Institute

Maribella Sonsona, Communications & Engagement Manager, Novartis Philippines

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APPISx Taiwan: 

Strengthening the Patient Voice in Health Technology Reassessment in Taiwan​

Sharon Hsiao Fei Yuan, Professor and Director, Graduate Institute of Clinical Pharmacy, National Taiwan University

Katherine Hou, Senior Communications & Engagement Manager, Novartis Taiwan

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APPISx India:

Tackling Heart Health in India​

Ram Khandelwal, Founder, Heart Health India Foundation

Farah Mecci, Communications & Engagement Manager, Novartis India

17:20

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APPIS Innovator Program: Partnering with Patient Organizations to Scale Innovative Patient Solutions

Session Introduction

Joy Ong, Director, Patient Advocacy, Novartis Asia Pacific, Middle East and Africa

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Neuromuscular-Get-Trophy: Widening the Accessibility and Awareness of Newborn Screening for Neuromuscular Diseases in Thailand

Sharing from 2023 Winner: Siriraj Center of Research Excellent in Neuromuscular Disease (SiNMD)

Oranee Sanmaneechai, Director of SiNMD

Rita Juneja, Head of Communications & Engagement, Novartis Thailand

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Closing the Care Gap with Virtual Tele-Counselling in South Africa

Sharing from 2023 Winner: Cancer Association of South Africa

Gretchen Minnaar, Services Manager, Psycho-social Support, Cancer Association of South Africa

Mandy Shargey, Patient Solutions & Services Design Manager, Novartis South Africa

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Delivering Personalized Disease Education Content through Patient-centric Tagging Systems

Sharing from 2023 Winner: HOPE FOUNDATION for Cancer Care

Sammy Tsai, Director, Advocacy & Development Department, HOPE FOUNDATION for Cancer Care

Katherine Hou, Senior Communications & Engagement Manger, Novartis Taiwan

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APPIS Innovator Program 2024 Launch

Sharing of 2024’s Judging Criteria, Categories for Submission and Key Dates

Joy Ong, Director, Patient Advocacy, Novartis Asia Pacific, Middle East and Africa

17:50

APPIS Summit 2024 Closing

APPIS 2024 Council

18:00

End of Event

Agenda

Connect with Us and Get Involved!

The APPIS Summit also sets the stage for the 3rd APPIS Innovator Program which aims to partner with patient organizations to scale innovative patient solutions, and a multitude of APPISx programs in countries that unite healthcare stakeholders to address unique challenges in diverse healthcare system archetypes.

Reach out to info@APPISInitiative.com to join our APPIS Community, sign up for our email updates and find out more about local initiatives in your country and how you can take part!

Subscribe to our YouTube channel to revisit previous years’ discussions and stay tuned for new updates!


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